Anybody else constantly have problems finding specialists who will treat you? It took me forever to find a rheumatologist because I would call, make an appointment, but as soon as they asked what the appointment was for they suddenly “don’t treat fibromyalgia patients”, and…
You too! I literally had to call like thirty places before giving up and going to the U of M rheumatology center (I didn’t want to go there initially because it’s over an hour away).
From 18 to 22 you meet a lot of temporary people.
Hey! So, I have MRSA. I have multiple breakouts right now, and I am really, really depressed about it. It makes me feel sad and disgusting, and so many online resources are absolute fear-mongering bullshit, so I wanted to reach out to you. I know it's silly, but I'd love to talk to someone who knows what I mean. I also wasn't sure if it was appropriate for me to talk about it as a chronic illness, or to talk about spoons- the terms feel right to me, but I don't want to assume. hope you're well!
Hi! I’m so glad you messaged me. I know exactly how you feel, it’s not silly at all. My body image has definitely taken a big hit. And my boils (sores? Whatever?) are on my inner thighs so it looks like an std and my girlfriend doesn’t care but I just don’t feel sexy at all. And I just can’t seem to get them to go away. Ugh! MRSA sucks! How long have you had it?
As a chronically ill person (fibromyalgia, polyarthralgia, CFS, hypermobility, orthostatic intolerance, asthma, cubital tunnel syndrome, etc.) I am not really sure if mrsa is truly chronic. I think it depends. I know it can cause fatigue, and a lot of people have reoccuring breakouts. And it definitely has a stigma. For me, I have so many other problems that I don’t really notice anything other than the sores. But it might impact your life hugely. The spoon system is mostly for fatigue and pain, sometimes anxiety or other mental illnesses, so if your MRSA causes or exacerbates those, then I say go ahead and use it if it helps you. You should use any tools you can to cope! It’s not gonna hurt anything, and the spoonie community is pretty accepting. I hope that helps! Sorry for the freaking wall of text. I got excited. Feel free to message me anytime! I’d love to have somebody to talk to about it.